Lemons 'n Lyme

When life gives you lemons, use them to beat Lyme


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It’s Been A While… Here’s What I Do in a Day

I’ve been getting a lot of questions about what my treatment is like these days, so I figured I’d share. But let me provide a quick update first.

Farmer's Market!

Farmer’s Market!

Well, I moved to Santa Fe, New Mexico. Yeah, you read that right. My parents moved here and since I finished school in May I moved with them until I’m healthy enough to be on my own/go to grad school. We are living in a hotel for a month until the house is done. Let’s just say my bedroom is quite packed with treatment stuffs :).

Last night in DC

Last night in DC

I went home to DC for a month earlier this summer before my family moved and I saw a new doctor. He’s an integrative doctor NOT an LLMD. We are keeping my LLMD on the back burner for now. The new doc got me off most medications and supplements (yessssss! Less pills!) and is focusing on detoxing my body and resetting my autonomic nervous system. Some blood work revealed my mold levels are still sky high even after 6 months of mold treatment. So, I’m back on cholysteramine and something called VIP spray (vasoactive intestinal peptide), since those levels are low. I’m excited to explore all the holistic healing that Santa Fe has to offer, though!

I crashed when I first got back to Colorado and was off all meds but now I’m slowly starting to feel better again. I’m really not having many specific symptoms anymore (Besides headaches) just the general exhaustion and run down feeling and I don’t last long on my feet or doing things. I take a nap every day and need to rest between activities or limit how much I’m doing. Still, when I am able to do things, I’m able to GO DO THEM for the most part. Fingers crossed. Maybe it’s just a good week. We will see.

ANYWAY, Moving has meant basically no cooking or baking going down (hello hotel life and all my cooking supplies being packed in boxes). We do have a full kitchen at the hotel but again, everything I own is packed in boxes in the back of my car. But I felt like I needed to post and update you all about what is going on :). It’s also meant not eating the healthiest in the past few weeks and I’m certainly feeling that. I can’t wait to get into the house and start cooking again and making bone broth.

My current treatment is focused mainly on detoxing. My doctor also has being doing colonics once a week.

Castor oil pack-ing

Castor oil pack-ing

So here is a *general* example of a Wednesday for me, a random day of treatment but most of my days look similar. Sometimes I wake up later sometimes earlier.

9 am: BT-detox drops (Byron White)

9:30ish- Wake up and take first round of Cowden protocol

9:30-10:30- make my way out of bed, Coffee enema and oil pulling

10:30-12:00- Juice, breakfast, morning supplements and meds, reply to emails from you guys

12:-12:30ish- yoga or bodyweight exercises (lately I’ve actually been able to go to the gym and do a little bit there!)

12:30-1:30: Sauna and shower

2ish- lunch + mid-day supplements (licorice to help boost my blood pressure) and meds

2-3:30- chill out or run errands (usually stalk the internet)

3:30-5: Castor oil pack (I only do this 3 days of the week, usually Wed/Thurs/Fri)

5-6: Epsom salt bath OR another round in the sauna plus another shower (I HATE being sweaty or dirty so I shower too much)

6- second round of Cowden protocol (I’m only doing half the protocol: 2 doses a day rather then the usual 4)

7ish: Dinner, evening supplements and meds

7-10: Watch too much TV, Juice number 2 somewhere in there (although I’ve been juicing less lately because $$$), dessert because I can’t live without it (you know me, it’s healthy, don’t worry), reply to more emails from you guys (actually usually I just read them and reply a week later when my brain is functioning)

Juice life

Juice life

My med taking has gone way done. I used to be taking something every hour! So that is a plus that it is at least slightly less. Anyway, if you have any questions please don’t hesitate to ask!


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“Why Don’t You Just Push Through?”

Lemons 'n Lyme:

So many great posts from other spoonies today…

Originally posted on lipstick warpaint:

Today, someone said to me something that I know a lot of people are thinking. “Why don’t you just push through? Why don’t you just try to live normally and do what you want, regardless if you might hurt a little more the next day.” “Maybe if you stay busy, and get a part-time job, you would feel better.”

I didn’t know what to say. I was so taken aback that I couldn’t even respond without stuttering while also trying to be polite. Because apparently I am a meek, passive person. Soon after, I cried. I cried a lot. Because that’s what meek people do.

I cried because I am feeling insecure. I am scared that my mind doesn’t work as well as it used to. I get so frustrated when I can’t find the words to complete my thoughts… I know my body isn’t strong like it once was…

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“Why Don’t You Just Push Through?”

Lemons 'n Lyme:

So many great posts from other spoonies today….

Originally posted on lipstick warpaint:

Today, someone said to me something that I know a lot of people are thinking. “Why don’t you just push through? Why don’t you just try to live normally and do what you want, regardless if you might hurt a little more the next day.” “Maybe if you stay busy, and get a part-time job, you would feel better.”

I didn’t know what to say. I was so taken aback that I couldn’t even respond without stuttering while also trying to be polite. Because apparently I am a meek, passive person. Soon after, I cried. I cried a lot. Because that’s what meek people do.

I cried because I am feeling insecure. I am scared that my mind doesn’t work as well as it used to. I get so frustrated when I can’t find the words to complete my thoughts… I know my body isn’t strong like it once was…

View original 293 more words

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Surrounded in the thick of brain fog

Lemons 'n Lyme:

Although I haven’t been diagnosed with POTS, I suffer from severe brain fog. This post by Sophia describes it excellently!

Originally posted on Spoonie Sophia:

Brain fog, otherwise known as cognitive impairment, is a very common symptom in many chronic illnesses, such as M.E/chronic fatigue syndrome, postural orthostatic tachycardia syndrome (POTS) and more. Forgetfulness, difficulty focusing, thinking and communicating are common descriptors of the fog. For me it is one of the most debilitating symptoms and I want to use this post to explain to non-sufferers what it is like to have a foggy brain!

Brain fog stops us from being able to concentrate on anything for very long at all – to illustrate this I’m am going to log the times of the day when my brain is clear enough to write this post.

27/4/14 12:11-12:40

I have postural orthostatic tachycardia syndrome (POTS). Brain fog in POTS is caused by a lack of blood flow to the brain. When a person with POTS stands or is upright, blood pools in the lower…

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Healing, Creamy Sweet Potato and Rutabaga Soup with Bok Choy

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In case you guys haven’t noticed, I’ve been really obsessed with soup lately. It’s the only way I can get bone broth in (I can’t stand it on it’s own!) and my tummy is really needing that healing bone broth. So, massive amounts of soup it is!

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Ingredients:

6-8 cups of bone broth

1 sweet potato

1 rutabaga

4-6 baby bok choy (if they are very small get 6)

Salt to taste

1/4 teaspoon cinnamon

Peel and cut your sweet potato and rutabaga into cubes. Boil the sweet potato and rutabaga in 4-6 cups of broth until fork tender (you want enough broth to cover the vegetables while they cook). 

Pour everything into a Vitamix or high speed blender, add the salt and cinnamon and blend until smooth. Place back into a large pot and add the remaining 2 cups of broth along with the chopped bok choy. Bring to a low boil and cook until bok choy is soft.

Eat that delicious soup!

Serves 4-6

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Easy Blueberry Coconut Milk Ice Cream WITHOUT an Ice Cream Maker (Paleo/Vegan/Raw)

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It’s summer and who doesn’t want ice cream to cool off on a hot day?! Well I love ice cream but finding a Lyme approved version in the grocery store can be quite difficult. It is easy to find dairy free ice cream these days but to find one that isn’t loaded with sugar or fake sugar is almost impossible. I decided I wanted to make my own BUT I didn’t want to have to deal with my ice cream maker. I wanted something easy and simple. I also was craving blueberries and wanted an authentic blueberry ice cream… not ice cream with fake blueberry flavoring in it. So I figured out how to make a VERY simple ice cream and thought it was worth sharing.

Ingredients:

1 can of chilled full fat coconut milk

1 cup of blueberries

1 tablespoon of honey, melted (optional)*

*Coconut milk is already relatively sweet and then you get the natural sugars from the blueberries but if you like your ice cream on the sweeter side the honey does just the trick without it being overboard.

First, you need to smash up your blueberries. You can do this however you like, a few options include using a fork to mash them in a bowl or put them into a ziplock bag and smash them with a jar/hammer/etc.

Now shake up your can of coconut milk and pour into a bowl. Add in your blueberries and honey if using. 

Use a hand mixer to mix everything up and get your mixture a little frothy. You only need to blend for a few minutes.

Pour into either a glass bowl or freezer safe tupperware container. Place into the freezer for 4-6 hours or until you have the desired ice cream consistency you want, taking your mixture out to mix it every 45-60 minutes. This mixing is more important towards the first half to keep any blueberry chunks from sinking to the bottom of your ice cream. If you don’t plan on eating your ice cream as soon as it reaches the perfect consistency then you will need to take the ice cream out of the freezer to soften a bit and mix before serving.

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This recipe is SUPER easy and it’s nice to make in the afternoon because it is perfectly ready by after dinner… a delicious summer dessert. I’ve been enjoying mine with some fried plantains on top!

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Balsamic Grilled Kale and Romaine

If you are looking for a different, new, simple summer grilled dish then this is it! 

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This past weekend my parents and I went down to our river house and celebrated a belated Father’s Day. We made a delicious dinner Saturday night on the grill that included Hawaiian Pork Skewers (a guest post from Canada Girl Eats Paleo from a while back!) and grilled kale and romaine.

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Ingredients:

1 bunch of Dino Kale

1 head of Romaine

Olive oil

Balsamic Vinegar

Get your grill ready! I used a charcoal grill on this occasion.

Kale first: Wash and dry your kale. Toss the kale lightly with some olive oil (about 1-2 tbs., you don’t need much). Next, lay the leaves of kale in an even layer over the grill and generously drizzle Balsamic over the kale leaves (trust me, Balsamic is your best friend tonight, you want to use way more then you think). Let the leaves cook for about 1-2 minutes then use tongs to flip them. Generously drizzle the Balsamic on this side of the leaves and again cook for 1-2 minutes or until the leaves start to char on the edges and the leaves look crisp. Place on a serving dish.

Romaine next: If you are using hearts of Romaine, cut them in half. If you are using a full head of Romaine, cut into quarters. Wash and dry the Romaine. You DO NOT need to coat the Romaine with olive oil. Place your Romaine on the grill and generously drizzle with Balsamic (like you did the kale). Let the Romaine cook for about 3 minutes before flipping and repeating the process. Again, pull the Romaine once it begins to crisp up and char on the parts that were touching the grill. 

Serve along some grilled meat and you’ve got a new play on boring lettuce. 

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