Okay, this is going to be an overall treatment update along with an LDI update. But first, I want to give a huge shout out to all of my amazing Lyme friends. Seriously, I wouldn’t be able to get through the hard days (or any of the days) without all of you. It’s absolutely impossible to understand what someone with a chronic illness is going through unless you have one, too. Meeting other people who struggle with the same issues as I do has been beyond helpful. I know I can count on you all when sh*t hits the fan and I need to vent or need reassurance I’m going to survive (seriously). It’s beyond helpful to just have someone to listen. SO, THANK YOU A MILLION TIMES OVER! ❤
I took my latest lDI dose on Tuesday 8/25, 11c. I didn’t choose the best time to take it as I took it the same week as a full moon (8/29). DUMB! My symptoms always pick up a few days before a full moon but I also believe I flared a bit from the LDI.
If you all recall, at the end of May/beginning of June I did a series of LDI doses. I started at 15c and every week after that I did 1c lower until I hit a dose that made me feel good. I took 11c right after a week vacation in California and I felt pretty good the next day. I wasn’t sure if it was the LDI or if it was just me feeling rejuvenated post-vacay. So the following week I took 10c, just to find out. Well, that made me flare! I was exhausted. So we decided 11c it was.
I’ve waited the 8 weeks and just repeated that 11c BUT we increased the amount of antigen in the formula. This may sound confusing. It was the same c (strength) but stronger antigen AKA less “filler” in the formula and more of the 11c in the dose. This may be what caused my flare from this round.
A flare for me has meant being even more tired then usual (really, is that possible?! Apparently), trouble falling asleep (ugh really? BUT I’M TIRED!), headaches, tummy troubles (also, is that possible, my stomach is already a mess?!), increased anxiety, and just feeling off.
We will see what my doctor has to say when I go to see him in 2 weeks. As always, I will keep you all posted. I get a lot of emails about how LDI is going and if I’ve seen improvements. Honestly, I haven’t seen improvements form the LDI…yet. LDI is a process. I know all of Lyme treatment is a process but LDI takes time to figure out dosing and once you do it takes many doses to feel improvements. So, there won’t be a quick or easy answer and you all will have to bear with me through this process :).
I’ve also begun bee venom therapy in the past month. I had a pretty strong reaction to it so instead of going full on we have to desensitize me. This means starting with just one bee, doing taps, and building up slowly. Once I am able to handle tapping from about 10 bees, I’ll be able to do set-ins, and then full stings.
Bee venom has an amazing amount of antibiotic, anti-inflammatory, and healing properties. It is one of the only things that can get inside (in-between) cell membranes where the Lyme hides. BVT can be healing in a number of chronic illnesses from MS to arthritis to Lyme and beyond.
Last but not least, I have also added procaine injections into my regimen. That’s right, I get to give myself nightly injections. Procaine is supposed to help calm and reset my overactive nervous system. I am doing the injections in my abdominal area in an effort to get my digestive system to relax. I’m not sure anything will ever help my digestive system (unless I can get a transplant!) but I’ll keep trying.
If you have any questions about the treatments I’m doing, feel free to leave a comment or contact me!