Lemons 'n Lyme

When life gives you lemons, use them to beat Lyme


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Picc Line vs. Port-a-Cath

I get loads of questions asking me about picc lines and port-a-caths so I decided to just make a video talking all about them! I discuss what they’re for, the differences, how to prepare and recovery from the placement procedure of each, long term care tips, and just some overall tips & tricks.

I hope this video is helpful for some of you!


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Lyme Treatment and Supplement Update June 2017

I know I haven’t written a real blog post in a while. I’ve been much more active on Instagram and YouTube lately. I have a recipe coming soon for the blog, though, so don’t worry (too much)!

I posted a video earlier this week on my YouTube channel with a full treatment and supplement update for June 2017. Watch below if you are interested in what sorts of treatments I’m doing as of late.

 


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Treatment Update: April/May 2016

It’s about that time again. Time for a treatment update. I actually don’t believe I ever did an update when my IV’s changed in January but we will discuss that in a moment. I figured this would be the perfect time for a treatment update not only because my treatment has changed, but also because May is Lyme Disease Awareness Month.

Before we get into the treatment, I’d like to quickly provide 5 “fun” facts about Lyme in honor of May being what it is.

5 facts about Lyme that you should know:

1. Less than 50% of Lyme cases present with the typical bulls eye rash

2. The standard Quest lab test (western blot and Elisa) only test for one strain of Lyme while there are 100s all over the world, 12 of which are currently known to cause Lyme (no wonder so many test negative for Lyme!) 3. Lyme is more epidemic than AIDS, west Nile, and avian flu combined

4. Annual cases of Lyme disease far exceed the number of new cases of breast cancer each year

5. You can contract Lyme disease from almost any insect that bites, from spiders to horse flys, NOT JUST ticks .

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As many of you may already know, mid December-end of March, I was completing weekly IV’s, about 3 IV’s a week. And they were seriously kicking my a**! I felt miserable and come April, I knew I needed a break.

I don’t think the IV’s were necessarily a bad thing, I think they were just doing their job REALLY well and it was a lot for my body to handle. I reached a point where I couldn’t take it anymore and I had to back off. I was completing a mix of hydrogen peroxide, vitamin C, and ALA IV’s along with Argentyn 23 (silver) and glutathione pushes. Mind you, at baby doses of them all. Man, I’m a wimp…. or at least my body is. My doctor even took the time to make fun of me on occasion ;).

Surprisingly, I felt like vitamin C was kicking my ass the most. How odd? The one IV that was supposed to be the most nourishing made me feel like I had been hit by a bus. Have any of you experienced that? Any thoughts on why vit C, of all things, would make me feel that way? I mean, not to say that h202 wasn’t also kicking my butt.

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Throughout all of that, I, of course, continued my detoxing regimen and will continue to do so until the day I die (maybe just at a lighter load in the future… well, definitely hopefully!).  So let’s move on to what I’m doing currently.

We decided to put a break on IV’s for April and May, until I seem my doctor again at the end of May. Instead, I’ve been completing:

  1. 2 ozone sauna’s a week with the goal of staying in them for 30 minutes to get as much ozone into me as possible. I’m big on the ozone right now, but due to the fact that my blood could win an Oscar for clotting skills, I can’t do ozone IV’s at the moment. I’m trying to make up for it my getting ozone into my body every other way possible.
  2. Ozone insuflation… in every hole south of my mouth (Hey, I know ya’ll like when I’m honest). Like I said, gimme all the ozone!
  3. All the usual supplements. I am not taking any tinctures or supps designed to kill or break biofilms, just your usual dietary supplements and the prescription medications I “need.”
  4. All my usual detoxing.
  5. I just began seeing a Chinese Medicine doctor who works with my main LLMD. She is going to be addressing food allergy/intolerance issues using the NAET technique. I also will be completing some more testing and muscle testing with her to determine what else may be going on or what the biggest problem is (mold? parasites? Lyme? What is the first layer of the onion that needs to be addressed to get to the other layers?). I’ll keep you posted on how those appointments go, I just saw her for the first time last week.
  6. I also have been working hard on the emotional aspect of Lyme and treatment. This includes seeing a therapist (I have a great one who also has been through the Lyme tornado) and completing a session of Family Constellation therapy, which I hope to continue in the future if finances permit.
  7. I am still doing bee venom therapy but I have dropped down to once a week.
  8. I added in Cranial-Sacral therapy once a week. Although I can’t say I’ve noticed anything from it yet, I feel something there and my therapist is fantastic. I’m excited to keep working with her.
  9. Per usual, I’m working hard to try and keep my diet in check. DANG, is that hard when you feel like crap with no energy to cook and the sugar cravings are on high.
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Ozone Sauna

So, that’s the gist of it. Still working hard to get my life back. And to be honest, the life I had when I was 7 years old. That’s the energy and happiness I want back. What a puzzle Lyme is, am I right?! I feel like we are missing one tiny thing and once I figure out exactly what that is, everything else will fall into place. Fingers crossed.

 

I wanted to share a video I made about a day in my life. I posted it on my YouTube channel and I share what a day in the life of someone with Lyme disease, who is treating holistically and alternatively, looks like:

 

How are you all feeling? What treatments are you doing? What have you found works for you? How do you keep your diet on track when you aren’t feeling well? Let me know, I love reading comments and hearing from all you wonderful people!

 


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Treatment Update 12/15

How often would you all like a treatment update? I do it pretty spontaneously, mostly based on major changes in treatment or how I’m feeling. But I can happily do it once a month if you’d be interested in keeping up with my progress more often and in a more official manner. Just let me know in the comments what you would like!

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This past month has been pretty rough. At the end of October I made a week long trip back to DC for a grad school interview and to see old friends. That seemed to set of a series of events upon returning to Santa Fe. I felt very run down by the end of my trip (for obvious reasons) but couldn’t quite seem to recover like I normally do after a few days of intense detoxing. A week after my return to NM, I came down with what I believe was the flu. Let me tell you, real people sick IS NOT FUN! I haven’t had the flu since I was a kid…. I’m not sure where or how I got it (I’m assuming from traveling) but, it sucked. I managed to sleep it off, get some ear ozone to speed up the healing process, and get through it fairly quickly. It seemed to linger after that, though.

Also, if you didn’t know, I got a port-a-cath placed. It took 3 attempts to finally get to the clinic to do it. Try 1: I requested a specific doctor and when I got there it was not him. So I refused the surgery and rescheduled. Try 2: I had the flu and surgery+fever does not mix. Try 3: WIN! The day before Thanksgiving, a week after the flu, I drove down to Albuquerque, had my surgery with the best of the best, and came home to recover with a big, yummy Thanksgiving meal the next day.

But, alas, nothing is easy with me. I had an allergic reaction to Chlorhexidine, the antiseptic they use to clean your skin before surgery and before any port access. My chest and neck were covered in a very red, very itchy rash (which you can see the remains of in the pictures below). I had to pause treatment for a moment to let it heal. I’ve healed. We’re good. Don’t worry. I get the special cleaning cream now.

THEN, this past Friday I couldn’t stop throwing up. I couldn’t keep anything down, not even a sip of water. Luckily my doctor and nurses are amazing, got me in for fluids and anti-neasua meds, and made me feel SO much better.

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The magnesium in my fluid drip made me so hot they had to cover me in ice packs

Woah woah woah let’s back up a few steps. In a previous post I mentioned that I stopped LDI treatment. Yes, I stopped it. It wasn’t working for me and it just seemed pointless to keep going, at least for right now. Different treatments work for different people so it’s possible LDI just wasn’t for me. Dr. Vincent also says that if you are doing LDI, to stop all other killing protocols. Well, I was still on other treatment protocols. Lots of factors here, folks. But we had to make the decision we thought was best for me.

And now only backing up a couple of steps. I GOT A PORT! WHAT?! Yes, I have this little thing in my chest that leads to my heart and makes my IV’s so much easier! It’s like a picc line in your chest. So, what do I use it for?

Current Treatment Protocol:

2x/week ozone therapy and glutathione push (soon to add in phosphytidal choline push)

2x/week bee venom therapy

2x/month therapy to work on the mental aspect of Lyme

the usual round of supplements (leave a comment below if you’d like to see my current pill regimen)

Herbals: Japanese knottwood, ABAB by Byron White, Biocidin for biofilm busting

My usual detoxing

We may eventually be adding to my IV protocol (actually, probably, will be) but we have to ease in and see how things are working, first. Now that I have this port I’ll be able to do some IV’s at home which makes it cheaper and easier.

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How am I feeling? No different. As you saw, it was a rough month. Who knows if I had a few different bugs/viruses that were working their way through my system or if I’ve been herxing a lot from the new rounds of treatment (including ozone and finally having worked up to a full bee appointment). All I can do is keep pushing and see what happens next.

I hope everyone is doing well or at least hanging in there and you’ve all had a cheerful start to the holiday season.

As always, sending my love and healing to each and every one of you!