Lemons 'n Lyme

When life gives you lemons, use them to beat Lyme


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My Favorite Detox Baths

If you aren’t subscribed to me on Youtube, you should be. I haven’t been announcing here every time I post a video and if you don’t want to miss one, head on over to my channel and click that red subscribe button!

My Youtube is filled with tips and tricks for healing Lyme, some food stuff, and a few random videos for fun on occasion :).

I posted this video a few weeks back but wanted to make sure you all saw it. Detox baths are one of my favorite ways to, well, detox, also to relax and even help kill Lyme!


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Treatment Update: April/May 2016

It’s about that time again. Time for a treatment update. I actually don’t believe I ever did an update when my IV’s changed in January but we will discuss that in a moment. I figured this would be the perfect time for a treatment update not only because my treatment has changed, but also because May is Lyme Disease Awareness Month.

Before we get into the treatment, I’d like to quickly provide 5 “fun” facts about Lyme in honor of May being what it is.

5 facts about Lyme that you should know:

1. Less than 50% of Lyme cases present with the typical bulls eye rash

2. The standard Quest lab test (western blot and Elisa) only test for one strain of Lyme while there are 100s all over the world, 12 of which are currently known to cause Lyme (no wonder so many test negative for Lyme!) 3. Lyme is more epidemic than AIDS, west Nile, and avian flu combined

4. Annual cases of Lyme disease far exceed the number of new cases of breast cancer each year

5. You can contract Lyme disease from almost any insect that bites, from spiders to horse flys, NOT JUST ticks .

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As many of you may already know, mid December-end of March, I was completing weekly IV’s, about 3 IV’s a week. And they were seriously kicking my a**! I felt miserable and come April, I knew I needed a break.

I don’t think the IV’s were necessarily a bad thing, I think they were just doing their job REALLY well and it was a lot for my body to handle. I reached a point where I couldn’t take it anymore and I had to back off. I was completing a mix of hydrogen peroxide, vitamin C, and ALA IV’s along with Argentyn 23 (silver) and glutathione pushes. Mind you, at baby doses of them all. Man, I’m a wimp…. or at least my body is. My doctor even took the time to make fun of me on occasion ;).

Surprisingly, I felt like vitamin C was kicking my ass the most. How odd? The one IV that was supposed to be the most nourishing made me feel like I had been hit by a bus. Have any of you experienced that? Any thoughts on why vit C, of all things, would make me feel that way? I mean, not to say that h202 wasn’t also kicking my butt.

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Throughout all of that, I, of course, continued my detoxing regimen and will continue to do so until the day I die (maybe just at a lighter load in the future… well, definitely hopefully!).  So let’s move on to what I’m doing currently.

We decided to put a break on IV’s for April and May, until I seem my doctor again at the end of May. Instead, I’ve been completing:

  1. 2 ozone sauna’s a week with the goal of staying in them for 30 minutes to get as much ozone into me as possible. I’m big on the ozone right now, but due to the fact that my blood could win an Oscar for clotting skills, I can’t do ozone IV’s at the moment. I’m trying to make up for it my getting ozone into my body every other way possible.
  2. Ozone insuflation… in every hole south of my mouth (Hey, I know ya’ll like when I’m honest). Like I said, gimme all the ozone!
  3. All the usual supplements. I am not taking any tinctures or supps designed to kill or break biofilms, just your usual dietary supplements and the prescription medications I “need.”
  4. All my usual detoxing.
  5. I just began seeing a Chinese Medicine doctor who works with my main LLMD. She is going to be addressing food allergy/intolerance issues using the NAET technique. I also will be completing some more testing and muscle testing with her to determine what else may be going on or what the biggest problem is (mold? parasites? Lyme? What is the first layer of the onion that needs to be addressed to get to the other layers?). I’ll keep you posted on how those appointments go, I just saw her for the first time last week.
  6. I also have been working hard on the emotional aspect of Lyme and treatment. This includes seeing a therapist (I have a great one who also has been through the Lyme tornado) and completing a session of Family Constellation therapy, which I hope to continue in the future if finances permit.
  7. I am still doing bee venom therapy but I have dropped down to once a week.
  8. I added in Cranial-Sacral therapy once a week. Although I can’t say I’ve noticed anything from it yet, I feel something there and my therapist is fantastic. I’m excited to keep working with her.
  9. Per usual, I’m working hard to try and keep my diet in check. DANG, is that hard when you feel like crap with no energy to cook and the sugar cravings are on high.
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Ozone Sauna

So, that’s the gist of it. Still working hard to get my life back. And to be honest, the life I had when I was 7 years old. That’s the energy and happiness I want back. What a puzzle Lyme is, am I right?! I feel like we are missing one tiny thing and once I figure out exactly what that is, everything else will fall into place. Fingers crossed.

 

I wanted to share a video I made about a day in my life. I posted it on my YouTube channel and I share what a day in the life of someone with Lyme disease, who is treating holistically and alternatively, looks like:

 

How are you all feeling? What treatments are you doing? What have you found works for you? How do you keep your diet on track when you aren’t feeling well? Let me know, I love reading comments and hearing from all you wonderful people!

 


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Treatment Update 12/15

How often would you all like a treatment update? I do it pretty spontaneously, mostly based on major changes in treatment or how I’m feeling. But I can happily do it once a month if you’d be interested in keeping up with my progress more often and in a more official manner. Just let me know in the comments what you would like!

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This past month has been pretty rough. At the end of October I made a week long trip back to DC for a grad school interview and to see old friends. That seemed to set of a series of events upon returning to Santa Fe. I felt very run down by the end of my trip (for obvious reasons) but couldn’t quite seem to recover like I normally do after a few days of intense detoxing. A week after my return to NM, I came down with what I believe was the flu. Let me tell you, real people sick IS NOT FUN! I haven’t had the flu since I was a kid…. I’m not sure where or how I got it (I’m assuming from traveling) but, it sucked. I managed to sleep it off, get some ear ozone to speed up the healing process, and get through it fairly quickly. It seemed to linger after that, though.

Also, if you didn’t know, I got a port-a-cath placed. It took 3 attempts to finally get to the clinic to do it. Try 1: I requested a specific doctor and when I got there it was not him. So I refused the surgery and rescheduled. Try 2: I had the flu and surgery+fever does not mix. Try 3: WIN! The day before Thanksgiving, a week after the flu, I drove down to Albuquerque, had my surgery with the best of the best, and came home to recover with a big, yummy Thanksgiving meal the next day.

But, alas, nothing is easy with me. I had an allergic reaction to Chlorhexidine, the antiseptic they use to clean your skin before surgery and before any port access. My chest and neck were covered in a very red, very itchy rash (which you can see the remains of in the pictures below). I had to pause treatment for a moment to let it heal. I’ve healed. We’re good. Don’t worry. I get the special cleaning cream now.

THEN, this past Friday I couldn’t stop throwing up. I couldn’t keep anything down, not even a sip of water. Luckily my doctor and nurses are amazing, got me in for fluids and anti-neasua meds, and made me feel SO much better.

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The magnesium in my fluid drip made me so hot they had to cover me in ice packs

Woah woah woah let’s back up a few steps. In a previous post I mentioned that I stopped LDI treatment. Yes, I stopped it. It wasn’t working for me and it just seemed pointless to keep going, at least for right now. Different treatments work for different people so it’s possible LDI just wasn’t for me. Dr. Vincent also says that if you are doing LDI, to stop all other killing protocols. Well, I was still on other treatment protocols. Lots of factors here, folks. But we had to make the decision we thought was best for me.

And now only backing up a couple of steps. I GOT A PORT! WHAT?! Yes, I have this little thing in my chest that leads to my heart and makes my IV’s so much easier! It’s like a picc line in your chest. So, what do I use it for?

Current Treatment Protocol:

2x/week ozone therapy and glutathione push (soon to add in phosphytidal choline push)

2x/week bee venom therapy

2x/month therapy to work on the mental aspect of Lyme

the usual round of supplements (leave a comment below if you’d like to see my current pill regimen)

Herbals: Japanese knottwood, ABAB by Byron White, Biocidin for biofilm busting

My usual detoxing

We may eventually be adding to my IV protocol (actually, probably, will be) but we have to ease in and see how things are working, first. Now that I have this port I’ll be able to do some IV’s at home which makes it cheaper and easier.

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How am I feeling? No different. As you saw, it was a rough month. Who knows if I had a few different bugs/viruses that were working their way through my system or if I’ve been herxing a lot from the new rounds of treatment (including ozone and finally having worked up to a full bee appointment). All I can do is keep pushing and see what happens next.

I hope everyone is doing well or at least hanging in there and you’ve all had a cheerful start to the holiday season.

As always, sending my love and healing to each and every one of you!


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LDI Update: August

Okay, this is going to be an overall treatment update along with an LDI update. But first, I want to give a huge shout out to all of my amazing Lyme friends. Seriously, I wouldn’t be able to get through the hard days (or any of the days) without all of you. It’s absolutely impossible to understand what someone with a chronic illness is going through unless you have one, too. Meeting other people who struggle with the same issues as I do has been beyond helpful. I know I can count on you all when sh*t hits the fan and I need to vent or need reassurance I’m going to survive (seriously). It’s beyond helpful to just have someone to listen. SO, THANK YOU A MILLION TIMES OVER! ❤

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I took my latest lDI dose on Tuesday 8/25, 11c. I didn’t choose the best time to take it as I took it the same week as a full moon (8/29). DUMB! My symptoms always pick up a few days before a full moon but I also believe I flared a bit from the LDI.

If you all recall, at the end of May/beginning of June I did a series of LDI doses. I started at 15c and every week after that I did 1c lower until I hit a dose that made me feel good. I took 11c right after a week vacation in California and I felt pretty good the next day. I wasn’t sure if it was the LDI or if it was just me feeling rejuvenated post-vacay. So the following week I took 10c, just to find out. Well, that made me flare! I was exhausted. So we decided 11c it was.

I’ve waited the 8 weeks and just repeated that 11c BUT we increased the amount of antigen in the formula. This may sound confusing. It was the same c (strength) but stronger antigen AKA less “filler” in the formula and more of the 11c in the dose. This may be what caused my flare from this round.

A flare for me has meant being even more tired then usual (really, is that possible?! Apparently), trouble falling asleep (ugh really? BUT I’M TIRED!), headaches, tummy troubles (also, is that possible, my stomach is already a mess?!), increased anxiety, and just feeling off.

We will see what my doctor has to say when I go to see him in 2 weeks. As always, I will keep you all posted. I get a lot of emails about how LDI is going and if I’ve seen improvements. Honestly, I haven’t seen improvements form the LDI…yet. LDI is a process. I know all of Lyme treatment is a process but LDI takes time to figure out dosing and once you do it takes many doses to feel improvements. So, there won’t be a quick or easy answer and you all will have to bear with me through this process :).

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I’ve also begun bee venom therapy in the past month. I had a pretty strong reaction to it so instead of going full on we have to desensitize me. This means starting with just one bee, doing taps, and building up slowly. Once I am able to handle tapping from about 10 bees, I’ll be able to do set-ins, and then full stings.

Bee venom has an amazing amount of antibiotic, anti-inflammatory, and healing properties. It is one of the only things that can get inside (in-between) cell membranes where the Lyme hides. BVT can be healing in a number of chronic illnesses from MS to arthritis to Lyme and beyond.

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Last but not least, I have also added procaine injections into my regimen. That’s right, I get to give myself nightly injections. Procaine is supposed to help calm and reset my overactive nervous system. I am doing the injections in my abdominal area in an effort to get my digestive system to relax. I’m not sure anything will ever help my digestive system (unless I can get a transplant!) but I’ll keep trying.

If you have any questions about the treatments I’m doing, feel free to leave a comment or contact me!


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Detoxifying Anti-Inflammatory Smoothie

I’ve been really into smoothies for the past few months. I’m not a fan of super sweet, all fruit smoothies and if you have a chronic illness like Lyme disease you really shouldn’t be drinking those types of smoothies too often. The sugar content of an all fruit smoothie is both inflammatory and will feed the Lyme bugs so I’ve had to find ways to make my smoothies nutrient packed but still tasty.

Although this smoothie takes a little bit more effort then throwing 3 ingredients into the blender, it is totally worth it! It contains both ginger and turmeric for anti-inflammatory effects and cilantro, lemon and lime juice, and greens to help detoxify.

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Detoxifying Anti-Inflammatory Smoothie

Serves 1

Ingredients:

1/4 cup full fat canned coconut milk

1/4 cup almond milk (or replace with more coconut milk or non-dairy milk of choice)

1/2 cup cold filtered water

1/4 tsp. ground turmeric

1 tsp. grated fresh ginger root (can replace this with 1/4 tsp. ground ginger)

1 tsp. maca powder (optional)

1 scoop protein powder of choice (optional)

1 small handful (1/4-1/2 cup depending on how strong you want the flavor) fresh cilantro

1 large handful spinach

Juice from 1/2 a lime

Juice from 1/2 a lemon

1/2 frozen banana

1/4 cup frozen mango

It is easiest to prep all your ingredients. THEN throw them all in a high speed blender. The best order is to place the liquid first, then all the powders/spices and lemon/lime juice, then the spinach and cilantro, and finally the fruit. This allows everything to blend evenly. Turn blender on and let it whirl until all ingredients are mixed in and it is nice and smooth.

I top mine with local bee pollen which contains an amazing amount of nutrients, has natural antibiotic effects, and provides the body with sustainable energy. I’ve added it into my diet to help aid in healing from Lyme disease. Using local bee pollen can also help with allergies. So, even if you aren’t sick but you suffer from seasonal allergies, bee pollen can be a great natural way to boost your immune system to local allergens without using drugs or chemical filled allergy meds.

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LDI + Gingered Cabbage (AIP)

Two weeks ago I had my first shot of Low-Dose Immunotherapy (LDI) for Lyme disease. When I posted the picture below on Instagram and Facebook, I got a huge response. Many people wanted to learn more and although I emailed many people with details, I figured I’d post about it, as well. LDI itself isn’t new but the us of it for Lyme is. I am not an expert on the topic but I will share what I do know. 11050173_805500209498155_4190632989240467067_n

LDI for Lyme specifically was really developed by Dr. Ty Vincent in Alaska (http://www.mat-suim.com/index.cfm/fuseaction/site.physicians/action/dtl/phys/99801759.cfm). He’s had over a 90% success rating in treating/improving Lyme patients. LDI is basically a way to desensitize the immune system to keep it from over-reacting. The idea is that our chronic symptoms (especially after years of treatment) are caused by our immune systems still reacting to the bugs even if they are gone or back in hiding. Our bodies basically just keep attacking ourselves so we still feel sick. LDI combines beta glucuronidase (an enzyme) with Lyme (and co-infection) antigens to help our immune systems build back tolerance. I think LDI is based off the idea that chronic Lyme would be treated as an autoimmune condition. I found this to be a really good article about LDI for Lyme: https://www.specialtynaturalmedicine.com/lyme-disease-ldi/. Dr. Schrader is also another well known doc for using LDA/LDI therapy but for all sorts of diseases and reactions. He is based here in Santa Fe and does some awesome work. He has recently added LDI for Lyme to his repertoire of what he treats.
The way I think of it is that LDI is like an allergy shot for Lyme- it helps boost and calm your immune system at the same time. The doses given are SUPER small so it’s almost like a vaccine… your body learns to handle the Lyme in VERY TINY doses so it can build up the correct tolerance. LDI is extremely safe since the doses administered are SO SMALL! Unlike traditional allergy shots which can cause a severe reaction in a small amount of people who are extremely allergic. LDI is administered in one of two ways, either under the tongue or by a tiny shot under you skin (similar to a B12 shot). I am receiving the skin shots.
Dr. Vincent works with people all over the country and will ship you the treatment. The cost of LDI is so cheap compared to a majority of Lyme treatments and it is very promising. I will keep you all posted but so far I have not felt any positive effects from the LDI. You can only receive a shot every 7 weeks and it can take up to 6 months to find the correct dosage for you (thus taking 6-12 months to really benefit, although many people do benefit after the first few shots if you get the dosage right). I did herx after my first shot which was at a low dose so fingers crossed!
I also finally have a new recipe for you all! I’m obsessed with ginger… ginger anything and I’m happy! The more ginger the better. Okay, you get the idea. But if you are as obsessed with ginger as I am then you’ll love this recipe, too. Ginger is a fantastic food (I pretty much consider it a food group ha!) with some amazing anti-inflammatory benefits, it’s also great for stomach upset and GI distress as well as improving nutrient absorption, it stimulates circulation, it can also help boost your immune system. Now do you see why I love ginger so much? I mean besides the fact that it tastes fantastic, too!
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Gingered Cabbage
Serves 4-6
Ingredients:
1 medium green cabbage, chopped
1 tbs. coconut oil
2 tbs. fresh ginger, peeled and grated
1/3 cup bone broth
1/2 tbs. ground ginger
1 tbs. coconut aminos
Chia seeds (optional)
Heat coconut oil over medium heat in a large skillet until melted. Add fresh ginger and sauté for about 1 minute.
Add cabbage and cook stirring frequently for 3-4 minutes.
While cabbage is cooking, whisk bone broth, ground ginger (you can leave this out if you prefer a more mild taste, this adds the last super kick of spice and ginger), and coconut a minutes together. Add this mixture to the cabbage and cook another 3-4 minutes until cabbage beings to soften.
Serve sprinkled with chia seeds on top!
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(I want to apologize for the layout of this post, WordPress is acting up and I can’t separate paragraphs! Grr)


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This Is What Happens When You Have A Life

You don’t have time to post! Sorry you all! I’ve been so incredibly busy working, shadowing at the hospital, and doing treatment. I haven’t had the energy or time to do any creative recipe creating. I’ve just been in a cooking slump, I suppose. I’ve pretty much been living off juice, homemade chicken soup, roasted veggies, avocados, plantains, and almonds. I’ll work on getting the kitchen juices flowing again. Please hang in there until I do!

And guess what else? I’ve relapsed a bit. We caught it before I completely crashed but I’m back on that treatment train.

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YUP, back on ALL the supplements and back to the big pill container plus taking something every couple hours and timing all my meals around medications. I’m trying my hardest to avoid antibiotics but I will be taking Byron White’s herbal drops for Lyme, Babesia, and Bartonella. I’ll also be doing ozone IV’s, glutathione pushes, Meyer’s cocktails, and phosphytidal choline drips. (Yesss, my favorite, needles and IV’s! I miss my picc line at times like this…). I’ll probably be starting B12 shots again. I just can’t avoid those needles, can I? Luckily I’ve been through it all before. I started A-L (BW’s Lyme formula) this past weekend. I did a challenge dose of 5 drops which had me HERXING! Let me tell you. I was EXHAUSTED, body aches, headaches, head pressure, felt like death, the usual, ya know. My doctor had originally wanted me to do a challenge dose of 15 drops. Jokes on him. Thank goodness I opted for 5.

So basically my life looks like this: Take massive amounts of pills, drops, and other gross liquids. Detox as much as possible (FIR sauna 3-4x a week, castor oil pack when I can, dry brush, juice). NAP DAILY! IV’s every Friday. Eat very VERY little sugar (blueberries a few times a week because I need to feed my sweet tooth somehow) and 110% paleo.  Take some more gross liquids and starve for 45 minutes until I can eat since everything always has to be taken on an empty stomach. Sleep. Oh, and I fit work in there somewhere too. Luckily my jobs rock. 🙂

Anyway, short and sweet but just wanted to update all you amazingly supportive people. When I told my Grandma this weekend that I was back on Lyme treatment she got very mad at the Lyme. So maybe if we all get very mad at the Lyme it will get scared and go back into hiding. Thanks in advance for being mad at Lyme for me ;). I’ll work on some recipe creating soon!